Rees is going between sleep and struggling with nausea and vomiting. He seems to become so tired out from the vomiting. He clearly does not feel well. Very disconcerting issue is that the lumbar drain is draining CSF for sure, however, it is still not known if the fluid that has continued to build up in his head and face is actually CSF!! We are helpless in a 'wait-and-see' situation with a multitude of unknowns. LORD, I feel like I'm failing miserably as I "wait patiently for YOU TO ACT."
the blog's name struck me : our big adventure... it is a huge one !
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Praying for your family.
ReplyDeleteHold tight.
Consider having your doctor check with Boston Children's Hosptial - they see the most complicated cases in the world.
ReplyDeletePrayers!
Praying for you all and for this sweet boy who has been asked to carry so much already. He's so lucky to have a loving family to carry with him.
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