We're continuing to do well here ... especially since we have the most-genius-of-ideas in this airplane/neck pillow!! 

THANKS SO MUCH, Auntie Jen-Jen!! 

It's been several days that we have successfully turned the distractor rods and they are disappearing more and more into Rees' head ... EEK! He's starting to feel a lot better and he's definitely looking better too.

That tilt of the head, however, is N-O-T a photogenic gesture ... I'm sorry to say that Rees has quite the stiff neck and he moves as though he cannot turn his head.  We've tried to help him each day.  His neck is so tight!!  We think that it is possible that he was so afraid to move for those first several days, now he has a pretty serious kink in the neck.  It is going to take some time to work this out.

This afternoon was SO GORGEOUS outside that I was able to take Rees out for a short walk and then he spent a good hour, at least, out on our deck soaking up some warm sunshine, putting puzzles together.

He really enjoys puzzles!

He didn't stop until he had finished them all!

We saw Dr. Denny again yesterday.  He checked progress and confirmed that we should keep turning through the weekend.  We will return to see him on Monday and the plan is to have the staples removed and then Dr. Denny will take out the rods ... (YIPPEE  &  YIKES!!).

This is supposed to be something that can be done right in the clinic and we're hoping and praying that is exactly what happens.  You just never know with this boy!  So, let's pray that it goes well and without any "you know what!"  

On the other side, Jonah will also be seeing Dr. Denny in follow-up to his most recent surgery.  Although, we don't expect to hear too much other than when the plans are to re-do the surgery.  Yep!  That's right!  You read that correctly.  You see, in our family, it seems that we like to do things twice.  

Apparently, Jonah "UN-DID" what Dr. Denny did during the surgery to revise and enhance the pharyngeal flap  ... WITH. HIS. TONGUE.  !!!

Folks, I just can NOT make this stuff up!!  At the last follow-up, Dr. Denny took a look into Jonah's mouth, flashlight in hand, giant-super-seeing glasses on the nose and Dr. Denny, TSK'd and said, "You're kidding me!"

"What is it?", I asked.

"He's completely unzipped!"

"Huh?", I questioned.

"He's ripped out all the stitches!"

Looking dumbfounded at Jonah, I asked, "Well, how did you do THAT?"

Jonah just looked at me and stuck his tongue half-way out and wiggled it.

Yep, that's right ... like I said, I can NOT make this stuff up!!