Hello Everyone!

We are maintaining good progress here!  THAT's A RELIEF, isn't it??

Since the major scare on Monday morning, things have gone better.

I have "turned" the rods on Rees' head four times and it has gone much better.  We take it really slow and Rees does his deep breathing.  He is so brave!

Monday night, our good friend, who went with me to the hospital, came up with the idea of using an airplane/neck pillow to help keep Rees' head stable and it worked BEAUTIFULLY!!!

His head does NOT move AT ALL!!!

HALLELUJAH!!

Each time the rods are turned, his forehead is moved forward one half millimeter.  We turn twice a day for a total of a millimeter each day.  This will help correct the collapse of his forehead and also allow more space for his brain to grow.  Because of all the complications that Rees had last year and all of the bone loss, his skull growth could not keep up with the growth of his brain.  

This created the high pressure that Rees was having which explains all the symptoms he had been having for the last few months but were amplified when the lumbar shunt was removed a month ago.  

We continue to learn so much medically speaking but also about this sweet little boy. Thanking God for sticking with us as we continue this work.

In other news, we have unfortunate news to share about Jonah ... it seems after his birthday two weeks ago, he has succumbed to a rapidly aggressive aging process that has pushed him from 8 to 80!!!

Just kidding!!

But take a look at that!!

Jonah's class celebrated the 100th day of this school year and all the kids were supposed to dress up as if they were 100 years old.  So, we got some paint sticks to make his hair look gray and got a fake moustache to match.  His teacher used a computer application that added the lines and wrinkles.  

DON'T YOU JUST LOVE IT??

What a cute little old man he will be!!