Surgery Number Seven (for Rees)

 The number seven is considered the number of Completion ... I wish that was the case for Rees' 7th surgery, which he had a couple days ago (alas, it is not his last surgery).  Just a day after his First Adoptiversary and his Baba's birthday (yes, they shall forevermore celebrate together!!), Rees had his 7th surgery.  We were pretty quiet about it this time as we pondered what might go wrong this time.  However, we started the day optimistic and trusting, armed with what is necessary to get through any day!  

We allowed Molly to take off from school so that she could go with us for the day.  In the last year, she has really taken an interest in healthcare and is steering towards anesthesiology.  As she is now in high school and already starting to think about her future, we thought it might be a nice opportunity to observe and be a part of the day.  What we didn't think about was having to get permission from anyone at the hospital to have her be with us.  Apparently, it is against the rules to have a minor in the pre-op room as well as the recovery and post-op rooms.  

** The thought never even crossed my mind **  

(I'm fairly certain that in this past year I have experienced a bit of brain cell degradation)

HOWEVER, God must have ordained the day ... because, though the rules were expressed and seemingly prepared to be enforced, exceptions were made in every instance ... very graciously, I might add.  It was amazing!  She was able to be a part of all the parts.

Something else that was so amazing ... Anesthesiology (the doctor, resident, additional staff) always comes in before the procedure to evaluate and ask questions.  They also like to assess whether or not they will need to make any special accommodations for the little patient.  We were asked who Molly was and we explained that she is our daughter, that she is the one that started us out with Dr. Denny and Children's Hospital, and that she is interested in becoming an anesthesiologist.

Well, the anesthesiologist, who happens to be the director for the department, talked to us in length, not only about Rees' procedure, but also how Molly can shadow with her team when she is a Junior in high school.  She gave us her card and explicit instructions regarding the process to shadow and to get a proper experience to help in deciding her future in healthcare.  We were so impressed!!

Then another thing happened that hasn't happened before.  This anesthesiologist told us she had a medical student with her for the day and she wondered if we would be willing to talk with her about the boys' adoptions, as well as the girls', and the social, emotional, and medical aspects of all that we've experienced.  It was amazing and we were able to share a lot with her.  She was really intrigued and took a lot of notes.  We were able to show her many photos (gotta love technology!) and talk about many aspects of adopting two severely medically-challenged boys.  We were told later by the Director that the student was glowing after interviewing us and that she was really excited that we were so open to share so much with her.  The Director stated that this was exactly the type of thing that helps to motivate and steer a student in the direction that they're looking for.  And Molly was able to be a part of that!

Before the surgery, this Mama was a bit anxious ... but that's nothing new for me, right?  Rees was pretty calm; just look at that beautiful grin!  He's so tough ... yet, so gentle and sensitive.  

For some reason, he was unable to take the versed ('goofy juice') this time.  He became a little grumpy when the nurse came in with the syringe of fluid and he was very hesitant to take it.  I tried to help the nurse out by giving Rees a small amount of the liquid (I'm used to being the 'bad guy'), but as soon as I gave it to him he gagged and threw it up.  But then, he couldn't stop wretching and, unfortunately, he didn't stop until he expelled the small amount of water he was allowed to have when he first woke up that morning.

So, Rees had to brave it out and go into the operating room without any liquid assistance to help him relax.  But he did pretty good with only a few tears at first, which were quickly diverted by a resident who handed Rees his cell phone all set to play Temple Run.  It worked at least until it was time to use the face mask.  Next time, the plan is that Rees will be given a valium when we arrive in pre-Op and that will work the same as the versed but we won't have to worry about him vomiting it up.

The surgical procedures scheduled to be done were to correct Rees' (very small) cleft lip, to reduce the size of his nostrils and to give him a nasal tip.  Well, this didn't all go as planned and they didn't want to push it during the surgery, however, what WAS done made a HUGE difference in Rees' appearance.  

We are absolutely amazed!!

Rees did okay and there were no wild and crazy mishaps or complications ... none so far after two full days since the surgery.  

We are so relieved and thankful!

The biggest surprise came when the doctor told us that Rees didn't have to stay overnight!!!  Say what??  We were shocked, even a little confused as this was definitely not what we expected.  We spent just a couple hours post-op and then we were able to bring our little guy home.  

Can you believe the difference??

Just take a look at the first photo in this post again ...

... it is truly amazing what can be done.  

Either way, we are crazy about our Boy-Rees!  He is so brave, so strong, so ardent and fiery (just like his name says) and we are so blessed to have him in our family (and SO THANKFUL for the toned down surgical experience this time around - Thanks, God ... )

One Year with Jonah and Rees

Well, here is our first "family" photo with Jonah and Rees, taken shortly after we met them a year ago.  This photo shows them looking somewhat happy and comfortable with us.  

THAT, however, WAS NOT THE CASE!

Our first few days with the boys were rough. 

Our first few months were an adjustment ...

... and after that ... 

...well, as you may recall, it got a lot better, but also really challenging! 

We are so happy to say that we made it through our first year!!  

So, of course, we had to celebrate with CAKE!!  

The boys L-O-V-E Paw Patrol, so we had it decorated accordingly.

They were pretty excited about that!

We thank the LORD that we made it through the first year.  

We have learned so much and experienced a great many blessings to counter the heartache we've endured.  Hopefully, we're stronger ... hopefully, we're wiser ... hopefully, we're more equipped for whatever year two brings us.

FALL is here!!

Fall is here and it's my FAVORITE time of year!  

I love ALL THINGS Pumpkin and Cranberry, Falling, Crackling, and Burning Leaves, the various Colors of Autumn, Dimly Lit and Cloudy Skies, and the Smell of Backyard Fires.

I also really enjoy taking photos of all the color and beauty of the season ... 

... of course, to include my kids!! 

 

I especially like going on our Fall Hikes ... 

and it warms this mama's heart to see these two boys sticking it out ... together!!

We recently celebrated Baba's birthday and he always picks a hike as the activity he wants to do.  

We took a trek along a nearby lake path ...

It provided for several beautiful spots to take photos.  Enjoy ...

School's In Session

Well, we have the first month of school under our belt.  Whew!  It's been pretty good but a definite challenge getting back into the routine, structure and discipline. Brynn has started off okay and likes her new teacher.   

She definitely enjoys the various gadgets that are used in class.  They use calculators, iPads, Smart Boards and Chromebooks ... oh boy!!

Our guy, Jonah, is enjoying being in first grade very much!!  

The classes are involved in Project Lead The Way and it seems to be a fun and creative way to get kids engaged in learning. 

Despite Jonah's obstacles in speech and language, he reallys enjoys socializing and interacting with his peers and they have been wonderful at accepting him just the way that he is.  While Jonah's speech is quite difficult to understand, fortunately, his peers have acclimated and adjusted to his way of communicating and can even interpret for someone who is not used to hearing Jonah talk.  

That really is wonderful and we are so pleased with the way the children are able to overlook the differences and accept Jonah the way that he is.  However, we have been continuing Jonah at Speech Therapy through Children's Hospital and we have now just received approval for the implementation of an IEP (Individual Education Plan) at school so that he can have more therapy integrated right into his daily routine.  

Jonah may have another surgery sometime in January to revise and/or enhance the pharyngeal flap that was done this past June, however, at this point, it is tentative depending on the progress with his speech.  He is working really hard and he does sometimes frustrate quickly.  But he has so much to try to catch up on (identifying letters and numbers while at the same time learning to read and understand beginning math concepts) all while he is working hard to make his mouth form the sounds of all those letters and numbers and words!  It really is A LOT and I am so proud of him and I really try to show him how exciting it is when he succeeds.  It's amazing how his whole face lights up!

And then there's this little buddy, Rees!  He's having a great start to going back to school.  He is much more comfortable with the routine and the structure and environment than when he first attended earlier this year . 

Rees is scheduled to have his next surgery late October.  The plan is to continue taking steps to correct the numerous issues he's been dealt.   

I do find that I am getting a bit anxious as I anticipate Rees' next surgery.  I am admittedly worn out and knowing that he will have surgery in October, then in January and then again in April ... well, let's just say that I'd like to throw myself on the floor to have a baby-fit!  Honestly, my life has become more challenging.   

Silly me ... I thought the biggest challenge was going to be the possibility of two kids having a serious surgery at the same time.  Uhhh ... 

... well, one surgery turned into eight surgeries in just seven months.  Eek!!  

But I am really happy that they are doing quite well.  They are changing and learning and growing every day ... and really doing SO WELL for all that they've endured in such a short time.

I am still a whole lot of worked hours SHORT of qualifying for FMLA for next year but thankfully my manager has been very understanding and has allowed me the flexibility to work around the numerous appointments and follow-ups we've had and continue to have.  It does put a bit of additional stress on me as I am constantly calculating, re-calculating, arranging, and re-arranging my work hours so that I ensure I am getting in all of my hours but I have been blessed as well in being able to balance it all.  

Rees, too, has been working hard at school and at home trying to learn ... though, he has a bit of an advantage with the fact that he started over and is in kindergarten again.  Yet, he is still behind the other kindergarteners simply because they have five years of learning experience on him.  But another advantage that Rees has that we feel will help him is that he pays attention when we're working with Jonah and he often follows along and wants to do what Jonah is doing so he's getting double practice, which is great!